Monday, 7 May 2012

Tears, Exhaustion & Fighting on with Faith

This week I was and still am getting very exhausted with my Training for the Tough Mudder. This is the part that I am really mentally strong with. It is the waking up early to Stuff Envelopes for Sponsor ship letters to Company's. Sending out emails, tracking down Drug companys that distibute the drugs I use at the Kidney Dialysis Community center and replying to any emails that deserve a big Thank you. This is the part that makes me sometimes want to just take care of Kevin and my disease and just let this Organ donor awareness journey move forward with someone else. However I really believe in my heart of hearts, that I have been choosen to do this proactive task of reaching out for the people that I see at DIALYSIS every Monday, Wednesday and Friday and for all the people that I don't know or see, that are struggling with this same situation or slighly different problems, however don't have the strength that for some strange reason I can push through.

I seem to ask for more Faith everyday and to be able to help to help the people, and to show me the signs that will help guide my path of success in helping the less fortunate.

I need this and the help to keep moving forward. I am hoping to find some trusting people that are not out for self promotion or as I have found out in this journey that are there for a little and then leave you swimming up hill . I will move the mountains that form in my way of the goals.
Keeping strong.

Extreme Training on Dialysis

I have done a Seminar at Uvic with Let's Talk Science and Dr. Paul Zehr.  I wanted to bring forward this seminar to share information on how the Kidney works and how extreme training on dialysis affects on health. DR. Jane Gair had organised a Medical student to explain the functions of the Kidney and how dialysis works to clean the body. Second year medical student Andrew did a fantastic job and his presentation was very thorough and insightful. I explained the practical side of how it affects myself and Dr. Paul Zehr was finishing with what can happen to one self and if there is any detrimental affects to this training process that I put myself through with my workouts.

Sadly Dr Zehr could not find any real studies.
At this point I now know that I have to record everything that I am doing so this can help the medical science teams have something to go on. I will start tomorrow recording all of my blood pressure numbers before, during and after my training sessions. Which consist of running, yoga, swimming and resistant weight workouts. I will also be recording all of my food intakes and times. My blood work will then be recorded and with all this information, I hope to be able to find out if this fitness is a helpful healthy journey or a hindrance to my goal, of being super fit for the time when I might be able to have a Kidney Transplant.
I am feeling stronger everyday, and with my side effects from being anaemic and the pain I go through with training, I feel like I am on track for June 23-24 Tough Mudder in Whistler.
My daughter Julia is flying in from Ibiza, Spain with my Brother, who is flying down from Scotland to pick her up and chaperon her here on the 20Th of June. Just in time to be able to be there at the finish line at Whistler. She is my focus when I feel like I am to tired to train or just overwhelmed. She pulls me through spiritually, and I catch another blast of energy.
To all the Daddy's out there that are away from there daughters, I feel your pain. Keep focused and believe you are with her spiritually.
Need to rest, had a big day at dialysis and trained 2 times, once before and once after dialysis.
Please get up and move and if you are moving you might as well register for Oran Donation.

Peace & Serenity
Kevin

Tuesday, 1 May 2012

Sponsorship Letter for Tough Mudder/ Organ Donor awareness


Please Check out my Sponsorship Letter, I really need your support

Thank you to the helpers that had a part in putting together this Letter. It is appreciated very much, because at the end of everything, what matters most is to HELP TO HELP THE PEOPLE.

A Very Special Thank You to all my Family for coming together in any which way they can to support myself and my vision of helping this cause of Organ Donation and the Kidney Foundation.

To my cousin Kim, who has heroically came forward to give me the hope of having a future, and to see my daughter grow up.  I can't express how grateful I am. everyday I am getting needled with those huge needles, I feel that I have hope. For this Thank You once again Kim.

You, my Family and /friends are all my strength, the people I can count on.

The Sun is Shining Down on Me

Dialysis/Tough Mudder Training / Sponsorship Finally Moving Forward Consistantly

I would like to share the fact that after my last stay in the Royal Jubilee Hospital that I am feeling better. I have had a number of Dialysis Treatments that have gone through without any problems. They have been able to run my blood through to be cleaned at a speed o 400ml a minute. Last run through ( this is treatment term for cleaning the potassium and other electrolytes out of my blood ) that I have, I ended up cleaning 100.7 Liters of blood. the best so far. However with this process comes extreme fatigue.
I did still make it through a 6 km run, climbed Mt Doug Trail and went to the pool for a hour. It was great to accomplish this and it gives me the mental strength to know that I am right on track for June 23-24th in Whistler B.C. Tough Mudder..
I have been working hard getting information out regarding the disturbing reality that B.C. has the worst Organ Donor Program. We need every ones help to stand up and move forward in any which way they can think of to increase this problem.
I myself being a Kidney Dialysis Patient have had 2 people die that have been either beside me or in front of me that lost the fight because there was no Donor for them. I DON'T WANT TO BE PART OF THIS STATISTIC .
 I am available to do and SPEAKING ENGAGEMENTS that people would like for me to share my story and journey of leaving Ibiza Spain for better health care, however finding out that the Organ donor program is so far behind many first world countries. I have left my girls and friends and my company to save my life here.
I want to say a big Thank you to Dr. Ganz and all the other Dr's that have been on the team to save my life so far. Next is to all the patient NURSES and helpers at the Renal unit at Royal Jubilee and the Renal Community Centre in Royal Oak.. They are really such Hero's. The after Care program in Victoria is fantastic, the social workers, the Nutritionists and of course the Handy Dart Service that helps get the patients back and forth safely.
To you all, THANK YOU.

I have had my SPONSORSHIP LETTER POSTED ON THE SIDE OF MY BLOG, please have a look. This does take alot of effort and time and I am open to any ideas that will help this movement move smoothly.
Feeling the HOPE AND FAITH coming through.
Thank you for taking the time to read my blog,

Fighting the ultimate fight,
Sincerely Kevin